55 Epizód

  1. Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia

    Közzétéve: 2018. 04. 12.

  2. Want to be involved in the Ataxian PROM?

    Közzétéve: 2018. 04. 11.

  3. Cindy DeMint support Group leader making a different

    Közzétéve: 2018. 04. 09.

  4. Joel Sutherland with DYK

    Közzétéve: 2018. 04. 08.

  5. Megan Kaiser discovering latest research.

    Közzétéve: 2018. 04. 06.

  6. Harry Orr about discovering the first Ataxia gene and his latest research. Live at #2018AAC

    Közzétéve: 2018. 04. 05.

  7. Tips for first time attendees to the Ataxia Conference

    Közzétéve: 2018. 03. 23.

  8. Keeping a Medical Binder

    Közzétéve: 2018. 03. 11.

  9. Ataxia Suport Groups They get me !

    Közzétéve: 2018. 03. 02.

  10. Did You Know Suport Groups are extended family and friends

    Közzétéve: 2017. 11. 23.

  11. Did You Know about research

    Közzétéve: 2017. 11. 23.

  12. Did You Know ? National Ataxia Foundation believes that this type

    Közzétéve: 2017. 11. 16.

  13. Did You Know? invisible aspects of Ataxia

    Közzétéve: 2017. 09. 20.

  14. Did You Know ? Annual Ataxia Conference (005)

    Közzétéve: 2017. 09. 12.

  15. Did You Know Podcast - Episode One

    Közzétéve: 2017. 08. 31.

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Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

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